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29 Dec 2012

Seasons Greetings

First of all, Merry Christmas to you all and hope you had a lovely  low pain Christmas day and the days surrounding were full of love and happiness.

Just a short post to wish you all well and to say that after 3 days in a row visiting family and travelling from town to town, meeting lots of people, I am still alive and in one piece... just about.

Christmas day was lovely and relaxed for me, though my family all seem to be coming down with some sort of flu virus, so I may have to isolate myself from them before I catch it, because it would knock me sideways!

I was very lucky this year and got the Kindle Fire from my parents and right now I am loving it. There is so much I can do from it (like laying in bed writing this post), and I am exploring all the amazing apps and books I can get!


soon we will be heading into the new year,2013 and all the great things it will bring for us all. I have been pondering over goals and revolutions for the new year but I'm not really sure on many, apart from the obvious main things like finding a job, a hobby, and continuing to run this blog and my pages raising awareness.

When the new year arrives I will be back to blogging and sharing things with you guys, what I would like to know is what sorts of posts you'd like to see so please leave a comment below with your suggestion. :-)


Thank you for reading 
Happy New Year
Jayne 
xx


23 Dec 2012

It's the '2012' Post.

well I think most people know that 2012 has not been a good year for me, being diagnosed with Fibromyalgia, coming to terms with my illness, trying to find medication that will work, losing my job, and all the other things that come with having a Chronic condition.

But I feel (through all the ranting) that I have come a long way this year and have still done a few pretty cool things too!

The beginning of the year was most likely the worse period. Learning about Fibromyalgia and how to live with it. It became my life, it depressed me and I was so so angry at the world. I got told I probably wouldn’t be able to go back to my job in the nursery, which broke my heart, I cried for days at this realisation (and it still stings a little now).

I also got my walking stick/cane around this time. I was petrified and embarrassed to use it. I was 19 and walking with a cane. I’ve grown since then and now I have no shame in my stick, I still get funny looks but I laugh them off most the time. My stick has given me confidence and lets me go out and do things I couldn’t do without it to support me.

Then in April I showed my body that even if it was against me, I would still get out there and do the things I wanted. Going to London to see Frank Turner was the most amazing experience. I was lucky to get my standing tickets changed to seated and although I missed the FTHC meet up before because I needed to rest, I still got to meet Valerie just before the gig :-D and also after the gig me and Ben saw Beans on toast do a street gig which was crazy! Then we went to London Zoo the day after as I have a hippo there that I have adopted, it was an amazing day and even with all the pain and exhaustion, I am so happy that I went and did it and showed that I am still able.

In August, Benjamin took me the lake district for my birthday weekend which was amazing and totally worth it. We had so much fun, I had learnt by then how much my body could take and how to deal with pain. It was such a gorgeous weekend.

In June I took a HUGE step for me and I left the house on my own for the first time in 6 months, only to the local post office. But since then I have gained so much confidence I have gotten the bus to town and been shopping on my own and although it can still scare me sometimes, the fear has shrunk so much.

The rest of the year has nearly blurred into one, of doctors appointments, numerous medication trials and being housebound. I left my job in October after months of sick leave, and am fighting against the benefits system now.

The main thing I am proud of this year is starting my ‘Chronically Crafty’ blogs, facebook page/twitter and most recently my Etsy shop. Although I am still only starting to get into becoming a health activist, I feel like I have done so much already. I have a big interest on all my pages and blogs and the numbers of supporters are still growing which gives me so much motivation to carry on helping people and spreading awareness of chronic pain conditions.

So overall this year has not been a great one, but it has had it’s amazing moments, and I can still think back on moments this year and smile, and be grateful of what I have got and what I’ve done.

Finally a HUGE thank you to everyone one of my followers for being there for me when I’ve needed help, thank you for listening to me and supporting me with my blogs and support pages. I am so so grateful that I have found all of you, and even though we may not have met you all mean so much to me.

Here’s to 2013 being a good year!

20 Dec 2012

Writers block , A huge thank you and some new things!


Hey, I'm sorry I haven't updated here in such a long time. Everything has been so hectic so close to Christmas and with birthdays too. I've decided that I am not going to try and get a post out now until most likely the new year. I'm just trying to pressure myself too much to write something and I have a completely blank mind.

Although I will not be posting on here until the new year, I will be updating my other support/awareness sites so make sure to check them out and give them a follow / a like to get daily updates, support and advice!

Facebook: http://www.facebook.com/ChronicallyCrafty - I'm so close to 50 likes which is crazy! Thank you all so much.

Twitter: https://twitter.com/Jayne_Burgess - Although this is under my personal details rather than 'Chronically Crafty' I do still update this and use this account to post support and information on chronic illnesses and awareness

Tumblr: http://chronicallycrafty.tumblr.com/

Pinterest: http://pinterest.com/ChronicCrafty/

Also two new things!

Etsy: http://www.etsy.com/shop/ChronicallyCrafty  - I have recently set up an Etsy shop to sell the jewellery that I make, so make sure to check it out, I ship worldwide

Email : ChronicallyCraftyjb@gmail.com - I have set up this email address so that people can contact me if they want help/support or just someone to talk too who understands what it is like to live with a chronic illness.

Thank you everyone who has been reading my posts this year, I am still getting used to the blogging world and loving it!  I would appreciate you checking out my other sites and supporting me.

Please leave a comment and let me know what sorts of posts you'd like to see me write in the new year!

Thank you for reading
Take care
Merry Christmas and I wish you all a happy new year!
Jayne 
xx

16 Dec 2012

Video : Hank Green talking about Chronic disease


Hank Green - Living with a Chronic disease :

In this video of Hank Green, which he talks about having Ulcerative Colitis, and just generally on living with a chronic condition.

To me this video offers a great outlook on life whilst living with a chronic illness/disease , definitely worth a watch.

“Chronic disease is a new normal. And it’s maybe not as good as the old normal. But it’s certainly better than other things could be.”

“Yeah your life is going to be a little bit different from someone who doesn't have a chronic disease, but your life would be very different if you were born in a different country, or if you were born with a different skin colour or if you were born with a different amount of money in your bank account. There is always things to wish that weren't the way they are. But that’s never going to be a fun way to live your life.”

Thank you for reading
Take care
Jayne 
xx 


14 Dec 2012

It's time to get into the Festive spirit!

I had every good intention of getting my next post written and up on her today, but the weather here is wet and my body is feeling it. Very high pain levels and very pain possible is flaring up .

So I thought i'd spread some festive spirit with this picture I've found on-line.


I hope you all get one of these presents this year and have a low pain Christmas .

Thank you for reading
Take care
Jayne
xx

12 Dec 2012

How to survive the Holiday period.

I thought as it is now 12 day's to christmas (roughly) I should write up my top tips to surviving the holiday's and still making it a good time to remember. So here we go...


Be prepared! - write lists of all the people you need to write cards too and who you need to buy presents for. Write lists for food you need to buy and pretty much write everything down so you don't forget.

Doctors and Medication! - Check with your doctor for their work times around the Christmas period and make sure you have enough medication to get you through the period. The last thing you want is to run out of medication when all the doctors and pharmacies are shut!

Presents! - Shop on-line, it's the best and easiest way to do it. You don't have to deal with busy shops, long walks and standing in queues. You can do all your shopping from your bed, and even get the gifts wrapped and delivered to the person you're buying for!

Food! - If you are hosting the Christmas meal, ask your guests to bring a dish each, split the meal between people that way everyone only has to cook one dish each and it saves you having to slave over the oven all day wearing your self out!

Decorations! - get your friends and family to come round and help you, have a day all together having fun decorating the house, make it enjoyable and with people helping you it decreases the stress and gives you a chance to have a rest every now and then!

Drink! - It's that time of year to enjoy a small drink or two, make sure you know how much you can drink that won't interfere with your medication. Have fun and enjoy yourself but be careful, you don't want to run the occasions by drinking the wrong thing and having bad reactions with your medications.

Social Gatherings! - It gets so busy with all these people you need to go and see, Christmas do's and family gatherings. Take time to have a sit down (or a lay down if possible) and relax. People around you will not mind if you need to take some time out. 

Most of al have fun and enjoy yourself, after all 'tis season to be jolly', and  to end this post enjoy a photo of my pups getting into the Christmas spirit! 




Thank you for reading
Take care
Jayne 
xxx


9 Dec 2012

beat those winter blues!


It's that time of year again, the day's are short, the weather is dull and chilled, sometimes you can't help but to feel a bit low and wish for the sunshine again, but here are some tips to try and help you beat those winter blues.

Vitamin D :

Vitamin D level's also known as the Sunshine Vitamin, can drop in the winter months (especially if you live in places with limited sunlight). The darker day's can leave us feeling a bit glum but it also can have an affect on our Vitamin D levels so here are some way's to boost that Vitamin D and help you to feel more like you in these dark winter months!

  • Try to spend as much time as possible outside, take advantage of any sunshine that you can get, also breathing in some fresh air will be beneficial too!
  • Get lot's of oily fish, eggs, milk and butter into your diet as they are packed with Vitamin D and will help boost your levels up.
  • If you don't want to take standard Vitamin D supplements Cod liver oil is a fantastic source of vitamin D and will also help with those stiff joints.
  • Check with your doctor to see what your vitamin D levels are like, taking in too much vitamin D can be toxic and bad for your health. Checking Vitamin D level's is just a simple blood test and it's always better to be clued up on your own body before jamming in lot's of supplements.

Keep the Mind Active:

Winter is a good time of the year to learn a skill, find a new interest or hobby. Also finding a new interest will give you something to focus on, especially if you are out of work due to illness. Also sharing your new found hobby with other people either family and friends or on an on-line community. There is hundreds of websites with different crafts and DIY idea's to get your mind running and to give you something to look forward to work on each day.

Also doing mental exercises, there are lot's of games/crosswords/Sudoku puzzles that you can purchase in books or even games for the WII or the DS games console's to keep your mind active and to entertain you therefore making the day go quicker too.


Keep Active:
Another way to fight away the winter blue's is to stay physically active.
  • -online/you tube exercise video's
  • -dvd exercise video's
  • - Video games - Wii Fit/ Zumba/ Just dance
  • - On brighter day's go for a walk - or go for a long winter walk wrapped up all cosy
  • -Yoga 



Eating Healthy:
Foods with too much sugar or caffeine can alter your moods, they may give you a quick rush of energy but throughout the day they will make you feel sluggish . Also high carbohydrates such as pasta and bread can often leave you feeling tired and sluggish too wish can add to that winter blues feeling.

Apples are a good food to snack on (along with all other fruit and veg) as apples contain as much caffeine as a cup of coffee! Oily fish such as salmon and tuna are great as they are high in omega oils and vitamin D which is an essential over the winter A

Some other small little tips:

  • Stay social, having company helps to boost your mood no matter what time of the year. Make time to see people and have fun and remember Laughter is always the best medicine
  • Speak to your doctor about light therapy, usually used to treat Seasonal Affected disorder it can help boost your brain activity and makes up for the lack of sunlight in the winter months.
  • Try and make the most of the winter months, it's an excuse to burn candles, decorate the house pretty for Christmas, wrap up warm and drink your weight in tea and hot chocolate.
  • Do the things you love, with the people you love, take care of your body and remember soon the sun will be out again and thing's can always get better.
Thank you for reading
Take Care
Jayne
xx

4 Dec 2012

Back into blogging , rambles and a bit of an update!


HAPPY DECEMBER EVERYONE!

I had a few day's break from finishing the WEGO Health's National Health Blog Post Month challenge and now I am back to start being in the swing of blogging. I'm not sure yet how many times a week I will post but I am aiming for at least twice a week or more!
  You will have to bare with me at the moment I am still trying to fight off a flu bug and struggling along with a shoulder that keeps giving way, But hey ho I'll fight through.

There's no real topic to this post just a bit of a catch up on how I'm doing. Today I finally got up the courage to call my Doctors as I have been putting it off for months now (just gained some sort of fear of going back) But I had no luck today and got to ring back tomorrow. It's just for a bit of a check up and I'm going to get him to look at my shoulder and also going to ask for blood tests to check my vitamin D levels and to see if I am allergic to gluten, although I think I just have a slight intolerance.

Think that is it for now, I am currently planning a blog that I hope to get up at the weekend or before, but going to Lincoln's Christmas market on Friday so I might get some photo's and hope all the hill walking doesn't break me too much.

Thanks for reading 
Take care
Jayne
xx